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Promoting Health Equity for Urban American Indians and Alaska Natives
Identifying and disseminating best-practices in the prevention, treatment and management of disease

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From UIHI Links to Other Resources  

Below are links to several websites and documents that provide guidelines, sample data use agreements (also referred to as data sharing agreements) and other information that may assist you when considering data sharing partnerships for research or other purposes.

null Council of State and Territorial Epidemiologists. Tribal Data Linkage Toolkit – Samples
The Council of State and Territorial Epidemiologists provides samples of a data sharing agreement and a confidentiality pledge, which lists rules for accessing data with personal identifiers.
null National Congress of American Indians (NCAI) Policy Research Center – Tribal Research Regulation Toolkit
The National Congress of American Indians Policy Research Center (NCAI PRC) developed this collection of user-friendly tools and resources to support AI/AN leaders and their communities in regulating research. Highlighted here are two of these resources that are particularly helpful for data sharing partnerships.
null Research Review Checklist for American Indian and Alaska Native Communities
The National Congress of American Indians Policy Research Center (NCAI PRC) has devel¬oped this checklist as a guide for reviewing research projects. The checklist includes several factors that are useful to consider when developing a DUA.
null Genetics Research and American Indian/Alaska Native Communities
Developed by the NCAI PRC this informational brief provides background about genetics research in American Indian/Alaska Native (AI/AN) communities. It includes a list of questions for communities to consider and an appendix with links to other relevant resources.
null Office of the National Coordinator for Health IT
The Inter-Organizational Agreements Collaborative developed model data sharing agreements and guides to provide health care providers and governmental departments with information to assist with exchanging electronic health information. These tools, including the following Documents Library of Data Sharing Agreements, are available at the Office of the National Coordinator for Health IT website.
null Documents Library of Data Sharing Agreements
The Documents Library includes 48 publically available data sharing agreements that have been reviewed and analyzed by the Inter-Organizational Collaborative.
If you have examples of Data Use Agreements or Memorandums of Agreement you would like to share on this page as a resource, please contact the Project Coordinator.
For more information, contact info@uihi.org.